TY  -  JOUR
AU  -  Marinetto, Anna
AU  -  Santini, Anna
AU  -  Agosto, Caterina
AU  -  Carraro, Caterina
AU  -  Lazzarin, Pierina
AU  -  Benini, Franca
T1  -  Sleep quality in children requiring palliative care 
and their families
PY  -  2022
Y1  -  2022-04-01
DO  -  10.1726/3832.38179
JO  -  Rivista Italiana di Cure Palliative
JA  -  Riv It Cure Palliative
VL  -  24
IS  -  2
SP  -  56
EP  -  60
PB  -  Il Pensiero Scientifico Editore
SN  -  2532-9790
Y2  -  2026/05/04
UR  -  http://dx.doi.org/10.1726/3832.38179
N2  -  Summary. Aim. Sleep disturbances are common symptoms between children with life-threatening (LTDs) and life-limiting diseases (LLDs), impacting their parents’ sleep quality. Nevertheless, up-to-date exhaustive data regarding sleep problems in children with LTD and LLDs, particularly related to their clinical condition, are poor, making it difficult to implement supportive measures. This study aims to describe the sleep quality of chronically ill children, along with that of their parents. In addition, the correlation between the child’s sleep quality and the burden of children’s care was investigated. Methods. This is a cross-sectional study conducted among parents of children and adolescents in care at our regional center for pediatric palliative care (PPC) and pain control, in the period from August 2020 to September 2020. Results. The need to change posture and pain are mostly triggers of a high number of arousals for chronically ill children, increasing the need for nightly procedures and disrupting children’s and parent’s sleep. Conclusion. Our study underlines the importance for families of children with LTD and LLDs to receive appropriate support from a PPC team to manage sleep disturbances, paying more attention to the evaluation and the quality of children’s sleep.
ER  -